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Dancing in NYC with Djinn

November 2009

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Dancing in NYC with Djinn

The needles are out of my hands

Last night was my very very last nupogen shot!  Wooooooohooooooooo!  I don't have to stick my poor tummy any more.

I wanted to thank you all for taking the time to read about me, and for your support.  I really appreciate it and it has made so many things easier.

So AC is over.  I feel like I'm walking along a bridge of health that is getting narrower and narrower. It's become a balance beam, and I'm getting closer and closer to falling off.  Thank god the AC is over. I feel pretty weak and I don't want to fall.

Jenni came down and took care of me this time, and when she had to go home Ben and Sion stepped in. This last round I had less nausea, but more fatigue.  I spent last week mostly on the couch or in bed.  This week I've caught Zoom's cold.  Hooray for Chinese medicine mouth and throat pills!  Actually, I'm going to show them to my oncologist because they have kept my mouth/throat much happier this whole time.

The last 8 weeks, or 56 days, Ive felt various degrees of yucky for about 40 or so of that. It's crazy to think of.  My doctor says that with the "T" chemo treatments over the next 12 weeks, that the "T" (or pacilitaxel) is "better tolerated" (isn't that a funny yet eerily accurate description?) by patients.  So he says I should get some of my energy back and my hair might start growing back too. :)  Weird that my eyebrows are still on my face.  I know a lot of women loose those, but mine apparently don't want to go!

Food is different.  My mouth isn't sore, per say, but extremely sensitive to salt, spice, sour.... carbonated drinks and wine just hurt.  Not that I want to drink much of them anyway. 

Friday is the first of the new "T" treatments.  We'll see what happens :) Teri is going to come henna my head in the beginning of Feb.  I can't wait!  

Comments

After all these years, you still never fail to make me smile. I look forward to seeing your henna, and seeing you again at a Pennsic in the fullness of time.
Your positive energy, inspires and astounds me, Kamille.

I love you, and I miss you. When the weather shifts and things thaw out more over here, I may have to pack up and come visit you.
You are a rock!

Be sure to post pictures of your hennaed head.

Henna!

Cool! What a lovely opportunity! Reminds me of the time a bunch of us picted out at an event...although you're prettier.

Keep healing!
I'm glad you are over that part. Yuck.

Thank you so much for taking some of the mystery out of the process.
I'm glad to hear you are through that bit, and we miss you! Much love, sweetheart :)
Sooooo, close.... that finishing line.... and Mt Everest climbed and conquered. Sure, there's still a few little mountains to get through, but at least the supposed hard part is done! Yay!

Thank you for this LJ! It makes it so I don't have to pester you with repetitive questions... Thank you for writing so much!!!

It's funny, what becomes status quo so easily... Yes, it's very funny/odd/scary that 'better tolerated' these days, means feeling better. and yet, every bit of good news or better news is just that. And you always impressed me with the skill of being able to find the silver lining and building upon that.

Love and strength to you, as always. xxxxx
yaaay! that parts over, and thank you so much for posting and letting us know how the journey goes....i hope "better tolerated" turns out to mean "not bad at all".

loving you, your energy and your strength....

xoxoxoxoxoxox
Kamille...

Can you do me a HUGE HUGE favor and give me an address where I can mail some things to you? I have nothing on you and I don't want to have to start stalking your friends :)

Leslie

Dude

Just heard from Jason that you were fighting the c-monster. He gave me this URL. Please know I'm cheerin for ya and send lots of love from England and Canada.

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