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Dancing in NYC with Djinn

November 2009

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Dancing in NYC with Djinn

No more than a 3 1/2 star hotel....

First of all, check out my cool hennaed head!  Teri and Stefanie are totally awesome, I had a really fun fabulous day.  My hands and feet are all hennaed too, and I got a head and hand message!!!!!!!    *ahhh*

The "T" or Taxol treatment didn't go so well.....
For one my vein kept spasm-ing, which hurts.... so I've decided it's finally time to get a picc line. I have to get blood tests taken and chemo through an IV every week for the next 11 weeks= at least 22 more pokes into the veins of my right arm. The advantage to getting one is they put a tube down your vein that stays there, so you don't have to get a new IV or needle stick to draw blood and your vein is protected a bit from the chemo drugs. I don't know too much about them, so when I get one on Wednesday I'll fill you in on them then.

For two my cold was still hanging around, and I just have very little energy.  Enough so that sitting around feels fine and I can talk up a storm, but I try to do anything and I need a rest.

For three on Wednesday I got a fever of 103, and they admitted me into the hospital!  It was exciting.  First my left breast/masectomy scar area started feeling sore, filled up with some more fluid, and then I start to feel feverish, sore, and weak all over.  By the time I get to the doctor's at 2pm my friend Sion insists we put me into this wheelchair to take me in and I don't argue with her (you can tell I felt yucky!).  When I get to the oncologists they say I'm at 103 and they are admitting me.  They call an ambulance to drive me 1 block to the hospital building and put me in the ER.  There they test my lungs, urinary tract, ears, throat, etc. looking for where the infection is..... nothing seems infected so they start me on two general systemic antibiotics.
By the next morning my fever is down and I'm feeling better.  So yes, I have an infection, but we still can't figure out where it is.  The good news is I'm not Nutropenic (which means you don't have enough white blood cells in your body, and is really common in chemo patients) I talk to at least a dozen doctors, and they decide to drain some fluid from my breast (didn't we do that enough last November? Guess not) to test in case that's where the infection is.  I don't know why but they send me to radiology to drain it.  The radiologist was really the only doctor I have encountered in this adventure who sucked.  Sucked, I say! 
But the docs don't want to let me go home 'cause they still don't know what is going on, and one of the antibiotics they have me on has to be administered through IV.

Thursday I'm feeling pretty good, Friday I actually feel better than I have in about three weeks.  My cold is finally gone, the effects of the fever are gone. So I get to sit around, have my meals brought to me, no responsibilities, and watch movies.  Not so bad, really!  The food is even rather yummy.  At Kaiser they send someone around every morning, and you get to choose from a small menu what you want to eat. I started to feel rather like I was in a hotel.  

The only bad part in the hospital really is the morning.  At 5am someone comes to check your vitals. Then at 6am someone comes to draw blood for testing.  Then the first round of doctors usually shows up around 7am.  On Friday at 7am, at least 7 people came in and surrounded my bed. They were the "surgery team", which means the surgery residents.  I don't recommend being woken up, lights in your eyes, surrounded by doctors, and interrogated about something as important as your health.  

We still don't know exactly what happened.  The fluid they drained didn't grow any bacteria.... some of the docs think I didn't have an infection but that one of my lymph nodes in my left arm stopped draining where it was supposed to.  Others think I did and I'm still on antibiotics now just in case they are right.  I think it was an infection.

So now I'm home, on antibiotics.... with a pretty head! 

Comments

You look beautiful sweetie...Your mohawk was pretty nifty but I think the henna is coming in first right now. After the 20th and when you are feeling better I would love to come see you...Hugs!
Yes come see me! Miss you too!

Wow what a ride...

I thought the last round of stuff was supposed to be the icky stuff... I'm glad that you are feeling better after all of that... I hope it was just an infection and the antibiotics take care of that! How long does this current chapter run, 11 weeks - and then... all done? As in walk away no touchy touchy? (I hope!)

You are a most rare woman! You can manage to find silver lining anywhere. Kudos to you! And no, I can imagine that getting woken every morning with things poking you, including fingers, cannot be such a pleasant experience.

Wow your henna looks awesome!!!!!

Love and Love and Love and Love to you.
xxx

Re: Wow what a ride...

I know! I think, though, that my body wanted a break and decided to force the issue! So I got a week off and time to get over that blasted cold.

chemo done in 11 weeks.... and then I find out which part of the study I am in. If I'm in the third category I will continue getting Avastin every three weeks until December! Not so bad though, as Avastin isn't a chemo drug... more like antibiotics in the scope of things (but it's not an antibiotic either). They will also put me on a pill called Tamoxifen for the next 5 years at least, that is supposed to really help prevent recurrence.
love you!
Oh my gosh your henna looks great! I miss you and hope I can see you again sometime soon :)
I love the henna! And U does too. (I showed him the picture, hope you don't mind!) So we called B on Sat/Sun and he let us know that you'd been released and were at home recovering. We're so glad you're feeling better!

Let me know when you want some company...:-)
Hey girl! What hospital were you in? I just realized i have a good friend that works at, well, you know a hospital in the bay area and wondered if you ever are in the one he works at! /random questions..

HUGS! LOVE the head - it looks fabulous!
I was at Kaiser in San Francisco, on Geary. That would be funny if he was there!
Hey gorgeous! I LOVE the henna! it is so you! I'm glad to hear you are feeling better, and would love to see you some night if you're feeling up to it...let me know! Roric sends his love too. :) XOXO!
If you have time your highness, of course! Thank you :)
Wow! Your henna looks awesome! I am glad you were able to find amusement in your hospital adventure!
sooo pretty henna lady!
the picc line will help with all the crappy vein stuff! hang in there you doing great!!

lotts of love

hospitals are lame

Then again they are saving your life, so it seems like and reasonable trade off. There's a profound issue I experienced about a loss of control over every aspect of your life. Including (in my case) when and how I pooped, ate, who I saw and how lucid I was at any one moment. It became a kind of way to let go of my ego. Which of course became a battle between trying to let go of ego and my ego. If only it was an Eggo, much simpler. Your description reminded me of that time. I think your head looks awesome

One time, when my mom was in the hospital, they had removed a "golf ball sized" chunk of her brain and she was feeling lonely. Who know's what purpose that part served ? Well, there was this one time, we snuck our cat into the hospital room. He was pretty cool about being stuck in our coat for the elevator ride but as he got upstairs, he got more agitated. You can imagine a cat in your coat, it's kind of tricky, especially sneaking it by the nurses station.

So we got to the room and Clark (the cat) was pretty happy to see my mom. So happy he peed right on the sheet, and the blanket. I can only imagine how my mom explained that one. When you drop the hair though, everyone seems to think it's serious and maybe they give you a free one.

Hoping you get a bunch. And that Ben is sneaking good food into your room.

-r

Re: hospitals are lame

A cat! Wow. Ironically, the time I had Ben bring me a cheeseburger it wasn't very good! Curses!

I got off easy in a lot of ways at the hospital... they didn't mind people bringing me food, or coming to visit me anytime, or how many visitors I had, or Zoom running in the hallway a bit, or any of that stuff. Don't know what would have happened with a cat! :) That is so awesome that you did that for your mom. I was feeling pretty good by the first morning so I really just got to have a mini vacation from my responsibilities. I didn't like the 5,6,7am rounds though. My last morning the nurse waited until 5:45 to check my vitals, it was fabulous. More sleep _and_ I wasn't asleep yet when the blood draw person showed up.

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